Treating ALS

While we do not yet have a cure for ALS, there is treatment. First, there is medicine, Rilutek, which slows the disease progression by decreasing glutamate levels. In addition there are many ongoing Clinical Trials that use agents that target possible causes of the disease. Furthermore, advances in the aggressive treatment of respiratory complications of ALS with noninvasive ventilation and respiratory management as well as aggressive nutritional intervention have provided significant improvements in the morbidity and mortality. Finally, there are symptom specific treatments and a multidisciplinary approach utilizing occupational and physical therapists, speech therapists, nutritionists, and nurse specialists that have led to improved quality of life and maximization of function in the person living with ALS. A review of disease specific treatment, clinical trials, and symptom management follows.

CMS has opened their Speech Generating Device coverage document for public input

The Center for Medicare Advocacy has issued an update on ... read more

Urgent Action Needed for Speech Generating Devices! Medicare Coverage Changing

Recent changes to Medicare's funding policy for Speech ... read more

Ice Bucket Challenge: Where do we go next?

  The Ice Bucket Challenge underscores how just a few ... read more

A challenge to all Philadelphia athletes and sports fans to support ALS research from Bernie Parent

Bernie Parent challenges all Philadelphia athletes and ... read more

Support Meeting for Individuals with ALS and their Families (Virtual and In-Person Meeting)

Please join us for our Support Meeting for Individuals ... read more