Understanding ALS

Other Organizations

The following web sites are provided for your reference only. The ALS Hope Foundation does not endorse or recommend the agencies or organizations listed, nor is this a complete listing of all of the websites available.

• International Alliance of ALS/MND Association
• Muscular Dystrophy Association
• National Organization of Rare Disorders (ALS/MND)
• The North East ALS Consortium (NEALS)
• National Institute of Neurological Disorders & Stroke (NINDS) - ALS
• American Academy of Neurology Foundation
• Society for Neuroscience
• World Federation of Neurology
• ALS Association (ALSA)
• Les Turner Amyotrophic Lateral Sclerosis Foundation
• To read about ongoing trials in ALS: http://www.clinicaltrials.gov
• To understand clinical trials: http://www.clinicaltrials.gov
• The ALSconnection gathers information such as symptoms, symptomatic treatment, and access to care for all ALS patients in North America. http://www.alsconnection.org
• An on-line community where those affected by ALS can share information and experiences as well as ask questions. http://www.patientslikeme.com/als/community