Understanding ALS

Amyotrophic Lateral Sclerosis (ALS), more commonly referred to as Lou Gehrig's disease, is a neuromuscular disease that damages nerve cells, known as motor neurons, which control voluntary muscle movement. It belongs to a class of diseases, known as motor neuron diseases. Currently, there is no known cause or cure for ALS, and the typical person lives only three to five years following diagnosis.

Please click through this section of our website to learn more about the different types of motor neuron disorders, possible causes, symptoms, and more.

To download a summary flyer designed especially for ALS Awareness month, please click here.

CMS has opened their Speech Generating Device coverage document for public input

The Center for Medicare Advocacy has issued an update on ... read more

Urgent Action Needed for Speech Generating Devices! Medicare Coverage Changing

Recent changes to Medicare's funding policy for Speech ... read more

Ice Bucket Challenge: Where do we go next?

  The Ice Bucket Challenge underscores how just a few ... read more

A challenge to all Philadelphia athletes and sports fans to support ALS research from Bernie Parent

Bernie Parent challenges all Philadelphia athletes and ... read more

Support Meeting for Individuals with ALS and their Families (Virtual Meeting)

Please join us for our Support Meeting for Individuals ... read more